Posted on December 7, 2012 - Tiny
I found Charlie a little over a year ago, it was one of those night where I surfed the internet looking for something to read. Charlie captured my heart, at first I was just reading his journey, which is tantamount to his life and I found myself being pulled into caring about this little guy. I would check for updates, pray for him when he was having a hard time and cheering when things were improving. At some points I was hoping not to see any updates, because no news is good news.
Charlie has E.B. I would explain the disease but his Mom does a far better job of that in her blog. I will tell you that it means that his skin is fragile, so fragile that a simple touch would make it bubble up and slip off. Charlie was born in agony and that is his life, fighting off infection and there is no cure. There is a miracle, it can’t be called a cure but it is the miracle of hope, the problem is the hope is one of those medical marvels that means a child has to be taken to the very edge of their life, stretching the courage of all those around them and then a lot of time is spent crossing your fingers and hoping that this miracle takes place and his life gets saved.
Charlie makes history every day that he is alive because he is the only person in the world to survive this treatment twice. This last time was harsh on all those that care about Charlie, it was touch and go for such a long time that I was perched on the edge of my seat with bated breath just waiting for news.
You may wonder why I have made this little guy my first blog post. It is simple, life isn’t fair for Charlie. You see, while he was in hospital fighting for his life someone with too much power and not enough intelligence decided that he could be denied education. That’s right, this little guy who needs to be educated at home for right now but desperately wants to be just a regular little guy, was just tossed out of school.
It is not just the fact that they did this to Charlie that makes me angry, it is that they can do this at all to anyone. Even if we remove the fact that they recanted on an agreement from the equation, what they have done is wrong. Every child is entitled to an education, I don’t honestly care if that education is so they can become a world leader or whether it is just socialization, every child matters, every child belongs and every penny we spend on a child is a penny well spent. How are you supposed to explain that to a child? Why should it be necessary to fight so hard for basic necessities in a country that is supposed to be among the richest in the world?
I urge you all to read the links I posted into the comments below, get to know Charlie and get involved.